Patient Information Advisory Group (PIAG)

• PIAG draft guidance: Identifying research participants
  Consultation on this draft guidance has now closed: this document is under review, and revised guidance will be issued in due course.
• 31 January 2006
  Download in Portable Document Format :
  • Your health records: A patient information leaflet about the role of PIAG
  • Information about patients: An information leaflet about the role of PIAG for Healthcare Professionals and Researchers
  • User involvement guide (January 2006)
    
• Monitoring Report Summary (July 2005)
  
• "Two sides of the fence": Health Service Journal Article - 7 October 2004
  Article on PIAG written by the PIAG chair - Joan Higgins
  

Chief Executive Bulletin 5 August 2004 - Patient confidentiality and information sharing
Clarification of the position regarding sharing patient information for clinical audit

• The PIAG Annual Report 2006 - 2007
• The PIAG Annual Report 2005 - 2006: full report and summary
• The PIAG Annual Report, June 2004 - June 2005: full report and summary
• The Patient Information Advisory Group Annual Report, July 2003 - June 2004 (Amended version to include summary of applications considered)

• The Patient Information Advisory Group Annual Report, October 2003
  

Download in Portable Document Format

• OECD Draft Guidelines for Human Biobanks and Genetic Research Databases
  
• Consultation on the draft NHS Constitution
• Access to samples and data for cancer research
• Inspection powers and funding of the Information Commissioner
• WMA Declaration of Helsinki revisions
• GMC Consultation response on Consent to research
• Response to Data-sharing Review Report (August 2008)
  Letter of response from the Chair to Mr Richard Thomas, Information Commissioner and Dr Mark Walport, Director of the Wellcome Trust to the Data-sharing Review Report produced on behalf of the Ministry of Justice
• GMC confidentiality guidance - consultation response
• Data Sharing Review – Consultation response (February 2008)
  
• Report of the Care Record Development Board Working Group on the secondary uses of patient information
  
• Code of practice for the use of powers to counter NHS fraud and security incidents
  
• Confidentiality and disclosure of patient information: HIV & Sexual transmitted infections (December 2006)
  
• Best Research for Best Health: A New National Health Research Strategy consultation
  
• Counter Fraud and Security Management Service consultation on access to relevant information, records and documents - January 2005
  
• Academy of Medical Sciences call for evidence for their study into use of patient information in research - December 2004
  
• BMJ article 'Data Protection, informed consent and research'- 28 July 2004
• Records Management: NHS Code of Practice consultation

• Every Child Matters - October 2003
  
  

Seminar 8 February 2006: Use of patient information in research
The Advisory Group held its first seminar on Wednesday 8 February at the Royal Society of Medicine in London. The purpose of the event was to describe the role that PIAG plays both in information and research governance, and the use of patient information in research or for other secondary uses. Members of PIAG reflected on what had been learned from experience over the four years since PIAG's inception in December 2001. The speakers drew upon three case studies to demonstrate the kinds of issues debated. Attendees were invited to contribute their views on the work of PIAG and how it might develop further.

Downloads are available in Portable Document Format :

• Download programme
• Download presentation - The PIAG (Professor Joan Higgins)
• Download presentation - PIAG and epidemiology (Professor Michael Catchpole, HPA)
• Download presentation - Patient confidentiality and public health research: a healthy conflict? (Dr Tricia Cresswell)
• Download presentation - Challenges in obtaining consent (Ms Barbara Meredith)

Top

copyright: © | updated

Download Adobe Acrobat reader for PDF files

Help with Portable Document Format (PDF)