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Standing Commission on Carers (SCOC)
Philippa Russell is a Disability Policy Adviser to the National Children's Bureau and was formerly was a Commissioner with the Disability Rights Commission and Director of the Council for Disabled Children. She is member of the National Learning Disability Task Force, an Honorary Fellow of the Royal College of Paediatrics and Child Health and a Fellow of the Royal Society of Arts. She has Honorary Doctorates from the University of York and King Alfred's College of Higher Education, Winchester for her work with disabled children and their families and is an Honorary Fellow of the University of Central Lancashire. She was awarded an OBE for her work with children with special educational needs and their families and the CBE for services to disabled people. In 1990, she was awarded the Rose Fitzgerald Kennedy Centenary International Award for women who have contributed to the field of learning disability. She was also awarded the 4Children Lifetime Achievement Award in 2004 for her work in developing childcare and other services for disabled children and their families. In 2005, she was awarded the RADAR (Royal Association of Disability and Rehabilitation) Lifetime Achievement Award for the furtherance of the human and civil rights of disabled people. She is the parent of a son with a learning disability and has wide contacts with voluntary and user organisations with an interest in disabled children, young people and their families. In this context, she is a trustee of the National Family Carers Network, the Mental Health Foundation and 4Children and is Chair of MOVE (a new charity established under the auspices of the Prince of Wales's National Disability Partnership to support the inclusion of children and adults with complex disabilities in school and community). Don Brereton has been Director of Motability – a national charity to
assist disabled people to achieve independent mobility – since 2004. Since
2006, Don has also been Chairman of Carers UK and an elected Trustee.
Prior to 2004, Don was a civil servant working mainly on health and social
security maters. His last post in the Department for Work and Pensions
was as head of the directorate covering disability rights and policy and
delivery of the key disability and carers benefits. Don is married with
three grown-up children. He and his wife, Mary, live with and care for
their adult son, Sam, who was born with Downs Syndrome. Don and Mary actively
work with local groups to promote services for people with learning disabilities
and their carers. Don was made a Companion of the Bath in the 2001 New
Year's Honours. Having established a career in education, Judith Cameron became a full-time carer in 1999 when her teenage daughter fell ill. Having moved into what she saw as a parallel, largely ignored world, Judith wanted the plight of carers to become more recognised. As a result, she wrote about her own situation and that of others for various national and regional newspapers. This eventually led to a regular column with the Guardian, ‘Who Cares?’ She has since written freelance about a wide range of topics from diversity in farming to Victorian educational methods and the French health system. Among others, she has interviewed William Boyd, Doris Lessing, Margaret Attwood, Andrea Levy and Courtney Pine, for a variety of publications. However, her passion remains with issues related to family life, caring and relationships. To this end, she is writing her first novel, ‘If this is a Life’, a fictionalised account of caring for her daughter Sophie until her death aged just 24 in 2006. She has also recently completed a book for Help the Aged, ‘Caring for Parents in Later Life’, which is due for publication in spring 2008. Judith lives with her husband and three surviving children in Bath. Dr Barry Carpenter is Chief Executive of Sunfield, a UK national charity for children with autistic spectrum disorders/intellectual disabilities. He acts as Director of Research to the Sunfield Research Institute. He is Honorary Professor of Early Childhood Intervention at the University of Worcester, (the first such Chair in the UK). In a career spanning 30 years, Barry has held the leadership positions of Headteacher, Principal, Inspector of Schools and Director of the Centre for Special Education at Westminster College, Oxford. He chaired the UK National Inquiry into the Mental Health Needs of Young People with Intellectual Disabilities. Currently, he is chairing the National Disabled Teacher Taskforce for the General Teaching Council of England. The author of over 100 articles on a variety of topics in special educational needs, he has won the prestigious Times award for his co-edited book 'Enabling Access'. His latest book (with Jo Egerton) is 'New Horizons in Special Education: evidence-based practice in action'. Barry also lectures nationally and internationally, most recently in Japan, USA, China and New Zealand. He has been awarded a Fellowship to the Royal Society of Arts, and was created O.B.E. by the Queen for services to children with special needs. In 2007, he was awarded an Honorary Doctorate for his research on families of children with disabilities. Barry has three children - one a teacher, one a student and Kate who has Down's syndrome and has just acquired a home of her own. David Challis is Professor of Community Care Research and Director of the PSSRU at the University of Manchester. His previous work includes responsibility for the development and evaluation of a series of studies of community based care for older people, which provided alternatives to hospital and nursing home care. Currently he is responsible for national studies of care coordination in older people’s services and evaluation of assessment procedures in England. Recent books include Care Management in Social and Primary Care (Ashgate,
2002); Towards Quality Care: Outcomes for Older People in Care Homes (Ashgate,
2004); Long-Term Care: Matching Resources and Needs (Ashgate, 2004); and
Performance Indicators in Social Care of Older People (Ashgate, 2006).
He is author of 17 books, and over 150 papers in journals and chapters
in books. PSSRU is The Personal Social Services Research Unit (PSSRU) was established at the University of Kent in 1974 and is mainly funded by the Department of Health. Since 1996 it has been a multi-site unit, with branches at the London School of Economics and the University of Manchester. Sheila Dent has worked in the public and voluntary sector throughout her career; this has included work in social care, the criminal justice system, the NHS and more recently in the voluntary sector. She has also been a trustee of two charitable organisations. In total, she has held senior management posts across those sectors for the past eighteen years, including posts at director and chief executive level for the past seven years. In all of those roles, she has encountered people in very stressful and difficult situations in roles as carers. She also has personal experience as a carer. Throughout her career, she has been involved in partnership working through external networks. She has project managed a number of multi-agency initiatives where cross boundary policies and procedures had the potential to undermine the spirit of how organisations aspired to work together. Sheila gained a qualification as a social worker at the University of Leeds and was awarded an MBA from The University of Durham. Lynne Elwell worked as a photographer until having her children. When Nicola, the second of her five children became disabled at the age of eight months, she made the decision to stay at home to support her; it was through Nicola that she became aware of the traditional response to disabled people from society and services. For the past twenty years, she has taken part in and led training, co-ordinating nine Partners in Policymaking courses in the north-west of England and supported course graduates to run courses in other parts of the country. Designing and developing work on 'Community Building' 'Working with Families', Circles of Support and Advocacy. She has also renewed my interest in photography, working with disabled people to produce positive images of disabled people. Working nationally she is continuing the development of leadership with
disabled people and their families across England. Rosey Foster was appointed Chair for Contact a Family Board of Trustees in November 2006. She was previously a Trustee for eight years with Carers UK and then Chair for the latter two years. Rosey's career in the health sector spans over many years in primary care and was Deputy Chief Executive of the Institute of Healthcare Management. She is currently serving on the Dept of Health Summary Care Records Advisory Group for Contact a Family. In 2003 she achieved Fellowship of the Chartered Institute of Personnel and Development and was awarded Companionship of IHM in November 2004. Rosey also undertakes Coaching and Mentoring for those in Primary Care and not-for-profit sectors and holds CIPD accreditation as a Coach Mentor. She is currently joint carer for an elderly relative with Alzheimer's
disease. Paul Jenkins is Chief Executive of the leading mental health charity Rethink. Rethink works with service users and carers to improve the lives of people affected by severe mental illness. Over the years Rethink has played a key role in championing the cause of mental health carers. It provides over 40 services for carers and supports 130 local groups, many which provide practical help for mental health carers. Paul was brought up in the Midlands and since childhood has been involved
in caring for his disabled brother. He started his career in the Department
of Health where he was involved in the implementation of a number of major
policy initiatives. Between 1998 and 2006 he was responsible for setting
up NHS Direct for which he was awarded an OBE in 2002. Anne McDonald is the Programme Director for Community Well-being at the
Local Government Association (LGA). The Community Well-being programme
covers LGA activity on the well-being of adults, including life-long learning,
health and social care, and the wider determinant of health and well being.
She joined the LGA in 2007 from the Department of Health (DH) where she
was a programme head in the Social Care Directorate. Her responsibilities
at DH included policy development on access to improved health and social
care services for older people, eligibility for and funding of those services;
and projects on shifting the emphasis of services from crisis intervention
to preventative approaches. Dr Helena McKeown became Chair of the BMA Committee on Community Care in 2004, which includes in its membership patients, representatives from Carers organisations, older peoples’ specialists, psychiatrists and paediatricians. Her role focuses on all aspects of delivery of quality of care outside of hospitals, including community Matrons, Intermediate Care, Discharge planning, Carers, Mental Health, Child Protection and Continuing NHS Care. Helena is a graduate of the Royal College of General Practioners Leadership Programme and has been a nationally elected member of the RCGP Council for four years. She sits on the Wiltshire Local Medical Committee, the national General Practitioners’ Committee, and is a former South Wiltshire Professional Executive Committee vice-Chair and Older Peoples’ Planning Lead. She has been involved in Primary Care Development, provision of good quality out-of-hours services, Intermediate Care, nurse prescribing, national liaison with Public Health medicine, work with the Royal College of Physicians and the Royal Pharmaceutical Society. Helena is also a GP Trainer, Quality and Outcome Framework visitor and GP Appraiser. She is dedicated to quality care of patients and carers issues. Her concern for local older people was a driver to become a local district councillor. Helena’s brings insight from her own past experiences as a working single parent. She is married with four children. TopCaroline joined Manchester as Deputy Director of Social Services in July 2002 having been Assistant Director in Wigan for five years. In April 2005, Caroline became Director of Adult Social Care with accountability for ensuring effective partnership approaches and commissioning high quality services to improve the independence and well-being of adults in Manchester. Caroline has broad experience in social care, since qualifying as a social worker in 1980; strong operational and policy background as well as a track record in partnership working, particularly with health services. She is also strategic lead for tackling Domestic Abuse in Manchester and also lead officer for Valuing Older People for the city. Nationally she is joint lead for carers issues for the Association of Directors of Adult Social Services. Caroline is passionate about making sure services are genuinely focused on what people want to help them and their carers get the best out of life, as independently as possible. Chris Osborne is a Policy Adviser at The Children's Society. She has the lead role in developing The Children's Society's priority programme of work with disabled children and young people. Following a period as a specialist social worker in London, Chris moved north in 1980 to set up PACT, one of the first family based short term care services for disabled children. As Head of Social Work for the Children's Society in the Yorkshire and Humber Region, Chris managed a wide range of children's services. Moving into national policy and practice development Chris has continued to champion the rights of disabled children and young people, most recently through co-ordinating the award winning Ask Us Initiative. Chris is currently chair of The Council for Disabled Children and co- chair of the Children's Advocacy Consortium. Jill Pay has been caring for her 19 year old daughter, Rowan, since her traumatic birth left her with extensive brain damage. Rowan's abilities are very limited; however she is a joyful and loving young woman. At the time of her birth, Jill had three young children - all under five years - including Rowan. Through her own personal development and training, Jill has qualified as a complementary therapist, as well as in teaching adults. Based on her own skills and experience, as well as her various training, Jill developed a course called "It's All About Me For A Change", which aims to give carers back a focus on their own needs and their own lives - in other words, that they are entitled to a life outside their caring role! She has also been involved in training Care Managers and Social Workers in Carer Awareness and Carers Assessments. She has recently been appointed as Carers Training Coordinator in the London Borough of Camden. In private professional practice, Jill is a qualified Homeopath, Reiki Master-Teacher and Breath4LifeTM Therapist. She mainly works on a voluntary basis, having worked with homeless young adults as a Homeopath (not currently); adults in a palliative care unit (with HIV/AIDS & Cancer) supporting them with Breath4LifeTM Therapy and recently started working therapeutically with teenagers affected by HIV and AIDS. Barbara Pointon was a principal lecturer in music at Homerton College, Cambridge until she retired early to care for her husband, Malcolm, diagnosed with Alzheimer's in 1991 at the age of 51. They were the subjects of the award-winning ITV documentary Malcolm and Barbara…A Love Story, (1999) and its sequel Love's Farewell (2007). She campaigns nationally and internationally for a better deal for people with dementia and their carers, takes part in health and social care staff training and has written articles for professional publications. She is an ambassador for two charities: for dementia (Admiral Nurses) and Alzheimer's Society, from whom she received a 25th Anniversary Award in 2004. She was awarded an MBE in the Queen's 80th Birthday Honours for services to people with dementia and is currently a member of the Department of Health's External Reference Group advising on its Dementia Strategy and of Alzheimer Europe's working group on palliative care. She has 2 grown-up sons and three grandchildren. Since Malcolm's death last year, she has returned to Homerton College as part-time co-ordinator of student music-making and her hobbies include directing music and drama groups in the local community, fruit and vegetable gardening and winemaking. Imelda Redmond joined Carers UK in January 1998 as Director of Development. In May 2000, Imelda was appointed to the position of Deputy Chief Executive with a remit to lead the organisation's activities on policy and campaigning, advice and information, training and development of new projects. Imelda was appointed Chief Executive of Carers UK in September 2003. She has been appointed to the National Leadership Council of the Department of Health and the National Stakeholders Forum at the Department of Health. Immediately prior to her joining Carers UK, Imelda was a director of a charity providing a range of services to families with disabled children. She is the Vice Chair of Contact a Family, a national charity for families with disabled children. Anne Roberts is chief executive of the Crossroads Association. Anne took up the post of Chief Executive in 2003. The Association is the umbrella body supporting the network of local Crossroads schemes and their delivery of services for carers. It was at a local level that Anne first became involved in working with Crossroads - running a scheme for carers of people with dementia and this experience gave her an invaluable insight into the impact of caring and how flexible, consistent services can really make a difference. She has worked in a number of roles and with different organisations in the voluntary sector before joining the Crossroads Association as Director of Operations in 2002. She is currently a member of the Inter-departmental Group leading the review of the 1999 Carers Strategy and is participating in the review of the National Dementia Strategy. Nigel Sparrow is chair of the Professional Development Board of the Royal College of General Practitioners, Associate Postgraduate Dean in General Practice at the East Midlands Healthcare Workforce Deanery and visiting professor of general practice at the University of Lincoln. He chairs the RCGP partnership with the Princess Royal Trust for Carers. He has been a principal in General Practice since 1984 and has been the senior partner at the Newthorpe Medical Centre in Eastwood, Nottingham since 1997. He is a GP trainer, and appraiser. He qualified from Bristol University in 1979. He has experience in the development and implementation of quality initiatives in primary care and has been involved in multi-professional and GP education and training for several years. He was Vice Chairman of Council of the Royal College of General Practitioners between 2004 and 2007.
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